The last couple of days have been rough, as the doctors, nurses and nurse’s aides are trying to get Mom comfortable – as are Dad & I – but it is difficult to find the right combination of medicines to do it right.
We got a surprise visit from my Aunt Nancy (Mom’s oldest sister – in case you didn’t know, Mom is the oldest of 7 children!) and Uncle David. It was so very nice to see them, and for them to drive all the way in from Toledo to visit with Mom for just a few minutes.
The effects of the medicines are severe – extreme drowsiness, disorientation and confusion, not to mention yucky stuff like hard-core dry mouth and trouble swallowing.
Before I saw Nancy and David yesterday, I had spent a couple of hours with Mom where she was more alert than she had been in a couple of days. I was able to get her to eat some vanilla ice cream, which has is now her food of choice, replacing applesauce! I’m heading over to hospice now, as I hope to see that after nearly 18 hours on a less tranquilizing medicine (but one that is supposed to help her comfort and nausea), she will indeed feel good but be able to know more of where she is.
Kris and Magaly arrive late tonight and will be able to spend some good time with Mom during this week – so I’m going to do a lot of hard work this week in the hopes of getting ahead so when they head out again next week, I can maybe take a few hours a day off to get over to hospice.
I’m sorry for the short post today – but I’m rushed to try and get things done and am just really tired from this whole week. Thank you to those of you who have sent cards and flowers, they are much appreciated. Dad and I read the notes and cards to Mom when she is up and while she is having a lot of trouble, she still knows what is happening around her and smiles when she hears from friends and family.
We know that this disease is taking its toll. The doctors and nurses and nurses aides, along with Dad and I, are vigilant about everything when it comes to Mom. Together, we are doing our best to get her comfortable. We know she will be excited to see Kris and Magaly and while in the past she has declined all visitor requests, she may be changing her mind on that. Please know, if you’d like to visit, it may be short and she may not be who you would expect her to be. This is the hardest part. My strong, loving and wonderful role model, who is loved and respected by many, is no longer strong. But, as this disease does not and will not define her, she is and always will be loving and wonderful.